Policy
- Partnerships - People
The success story for Uganda, and also for other
countries but at a different pace, has been to develop
the policy framework, form the partnerships, and most
recently to think about the HIV and AIDS-related needs
of the people.
Hope
Clinic Lukuli listens to its patients and its community
and designs the delivery of health services to meet their
needs, in the form that is most likely to encourage their
initial and then continued use of the services. We hear
this from our clients
The policy framework
and specifically the Government of Uganda's acknowledgement
of the risk to the population of HIV led to openness,
national awareness campaigns and the 'Zero grazing' guidance.
That willingness in the late 80s and early 90s of the
government to inform its populous was a key start. Consider
the countries which only began to publicly speak about
a need for action in the past decade - look at the prevalence
rates in their populations.Partnerships and the need to
bring together education, health and research within the
country and development partners was another key step
for Uganda. In the past 10-15 years, the coordination
has been improving - family planning sites now offer PMTCT
services; most government hospitals provide HIV testing
as a routine part of admissions; the Global Fund granted
Uganda HIV funding since 2003; US PEPFAR identified Uganda
as one of the 15 focus countries with funding since 2004.
Meanwhile, the Government and civil society in Uganda
was getting on with the awareness work, the information
on prevention and accessing services, the actual delivery
of care and support and the constant challenge to bring
together stocks of ARV and the households that need them.
In the majority of instances, a household that does not
have the financial capacity to buy ART.
Which
brings the conversation to the People. Policy
- Partnership - People is about planning the HIV services
for the person, whether negative or positive, whether
alone or in an affected household. The design
of HIV services that is working is where it is client
focussed. Removing the Stigma of only finding
the services at a site with 'HIV' painted on the walls
and logo; reducing the Time away from their smallholder
farm or market stall or employment, and bringing the services
to the place they already visit for fevers and maternity
care; addressing the Inertia through community level information
and committed people who will engage and motivate people
with accurate information and can share the promise of
services for those affected by HIV; reducing the Cost
of travel to the HIV service site, the cost of the test,
the cost of the mosquito net or water filter to reduce
opportunistic infections; lastly address lack of Knowledge,
or the wrong information being held. Shaking hands is
safe, cleansing rituals and showers don't work as PEP,
babies can be born HIV free if the mother is tested and
she and baby are treated.
This
STICK, acts like the children's game in Africa. The wheel
they roll along is the comprehensive HIV services working.
The STICK can be good, to keep the services going, or
bad and put it into the wheel and it stops - services
fail. Hope Clinic's Director took this STICK concept to
other NGOs through the New
Partners Initiative (film)
Partnerships
have led to projects - start it up, staff it anew, buy
the equipment, wait for the clients, close the budget,
close the service, file the donor report. These are the
stigma-rich sites where people don't want to get off the
bus, they are not community based, but cluster around
already busy government sites, they are narrowly doing
testing, another does ART, another does PMTCT. The client
is expected to travel from place to place, away from home
and their place of employment. We heard from the clients
and the community and we acted in response:
Hope
Clinic Lukuli uses the good STICK.
Support to
the community and the staff to appreciate why the services
are necessary and how they fit into the general health
care the clinic provides. Hosting HIV services reduces
the stigma, the clinic's people/ patients visit for fevers,
reproductive health or child immunisation. Each group
provides HCL staff with the chance to calmly talk about
HIV and knowing one's status.
Training
not just in the specific service of that medic or that
grant support but a wider understanding of how the client's
feel and the pressures of time and culture that could
affect their decisions to visit the clinic. We have clients,
like Gaudencia, who know their status, have not had to
brand themselves in public with it, and yet are asked
for advice and refer and encourage people to the clinic.
The training is ongoing, with supportive supervision discussions,
encouragement and the reward of a grateful community.
Infrastructure
is a great motivator of staff and unpaid volunteers. It
means they have the tools of their work and the confidence
that when they refer a person to become a patient, the
counsellors, the laboratory staff and the drugs will be
there. Through being a Government of Uganda accredited
ART site, the drugs are funded by local tax collections
or the Global Fund or purchased by the Clinton HIV/AIDS
Initiative with CHAI being funded by UNITAID. The 'sustainability'
that projects crave, is achieved as Hope Clinic Lukuli
is now 11 years old, when US funds stopped supporting
new HIV positive clients, the Ministry of Health supported
Hope Clinic, with these partnerships, to continue to serve.
Today over 650 HIV positive clients are supported at Hope
Clinic: half of those who receive ART are on MoH/GoU drugs
from the non-US partners to Uganda.
Community
is essential to ensuring that the design and delivery
of HIV services and AIDS-related services is efficient.
Clients can access the services near them, priced at a
level that removes financial barriers to access. The community
relies on the catalyst of friends and information channels
that will influence usage, reduce stigma, and steadily
bring those who still refuse but are visibly ill into
the comprehensive care. Hope Clinic Lukuli thanks Gaudencia,
Margaret and Stanley for this work as volunteers.
Knowledge
that is accessible, relevant to that community and in
the format that promotes its understanding and action
is the key. The Policy is macro level, the Partnerships
are a bridge through country coordinating mechanisms and
partnership framework agreements to match need to funds.
The People are the keepers of the knowledge of how they
want the services delivered.
The
thirty years of AIDS has seen great development of policy,
with it being more clearly informed by affected populations.
The partnerships have years of experiences to draw from.
The current challenge is to get the funds to the last
organisations that serve the people. Hope Clinic Lukuli
uses Support, Training, Infrastructure, Community Catalysts
and Knowledge to design and deliver the comprehensive
HIV and AIDS services that Makindye needs. We do it for
and with government, our clients benefit from UNITAID,
Global Fund, CHAI, national taxes and US PEPFAR resources.
As
the world marks #AIDS30 and the UN GA HLM #AIDS2011 meets
in June 2011, the civil society organisations that get
on with the work should be considered. Advocacy has shaped
the Policy, The Global Fund, PEPFAR and innovative financing
like UNITAID are funding the Partnerships. The People
are the clients to be, the patients on the register, the
community they live in and the community-based health
providers tha they already rely upon for fever management,
maternal health and childhood healthcare. If
you would like specific examples and statistics, follow
the links on the left above or email
the Director